We are happy to announce that GliMR has created an animation video to
“Inform patients about the reuse of medical data for scientific purposes”
and that this video is available in 17 different languages!
GDPR allows the reuse of medical data for research, and data sharing, under certain conditions. Therefore, this video is an important tool for hospitals, clinicians, and researchers
to help them comply with the transparency requirement of GDPR.
Currently, the final videos are being finished and the release is planned for 4 and 5 November 2021
, as part of the Brain Tumor Awareness Week 2021. We hope we can count on ALL
our members to help us with distributing this video within institutions (e.g. via data protection officers), networks, patient organizations within your country
. Sharing to conference or journal boards is also welcome.
To help you with distributing this project, we are working on a webpage
and email template you can use. Feel free to take a look at the page and video, but we urge you to wait with distribution until the release date. Don’t forget to put the date on your agenda. More information about this will follow in the next week.
In the meantime, we would like to ask you to let us know who you can contact within your region and country via these forms. Please, don’t restrict your contribution to one contact or one center. A few extra minutes of your time to share it nationally will significantly increase the impact of this project!
WG5 would like to thank everyone who helped with the video and the language translations.